"Kodi ukufuna kukhala ndi moyo - achite!" Mafunso ndi Mtsogoleri wa DiaChallenge Project on the Diabetes

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Pa Seputembala 14, YouTube idzayambitsa ntchito yapadera - chiwonetsero choyamba chenicheni chobweretsa anthu pamodzi ndi matenda amtundu 1. Cholinga chake ndikuphwanya anthu okhudzana ndi matendawa ndi kunena zomwe zingasinthe moyo wa munthu yemwe ali ndi matenda ashuga kuti akhale abwino. Tidafunsa yemwe akutenga nawo gawo ku DiaChallenge Daria Sanina kuti atiuze nkhani yake komanso zomwe akuganiza polojekitiyi.

Daria Sanina

Dasha, chonde tiuzeni za inu. Kodi muli ndi matenda ashuga bwanji? Mukutani? Kodi mudakumana bwanji ku DiaChallenge ndipo mukuyembekeza chiyani?

Ndili ndi zaka 29, shuga wanga ali ndi zaka 16. 15 mwa iwo sindinatsatire shuga (shuga wamagazi - pafupifupi. ed.) ndikukhala pa mfundo ya "bola ine ndikhale - bola ine." Koma moyo wathunthu, kwathunthu. Zowona, moyo wabwino sunali ntchito. Kupweteka kwa mwendo, kukhumudwa, kusokonezeka kwa chakudya, mavuto ndi kugaya kwam'mimba. Anakulitsa insulin m'maso. XE sanawerenge. Mwa chozizwitsa china, ndidakwanitsa kukhalabe ndi moyo mpaka lero. (Ndingachite bwanji izi?) Ndikuganiza kuti ndidathandizidwa ndi omwe adataya ziwiya zomwe amayi anga adaziyika (ndi dotolo), chidwi changa cha masewera, zothandizira moyo komanso mngelo wosamalira bwino. Ndili ndi bizinesi yaying'ono yokopa. Posachedwa, ndakhala ndikutsata tsamba pa Instagram pomwe ndimawauza ndikuwonetsa kuti shuga si chiganizo.

Mu Seputembara 2017, ndidayika pampu ya insulini, nditaona kulengeza za kukhazikitsa kwaulere pa Instagram ndipo ndimakhulupirira kuti pampu ndiwopanda matenda ashuga ndipo zinditengera chilichonse. Chifukwa chake - izi ndizolakwika kwathunthu! Ndidayenera kulembetsa pasukulu ya matenda ashuga kuti ndidziwe momwe pampu imagwirira ntchito, ndikuyambiranso matenda ashuga komanso thupi langa. Koma ndidalibe chidziwitso chokwanira, ndimakonda kusokosera (kuchokera ku liwu loti "hypoglycemia", zomwe zikutanthauza kuti shuga yochepetsa magazi - pafupifupi. ed.,, adalemera ndikufuna kuchotsa pampu.

Patsamba la opanga ma satelayiti, ndidawona zambiri zokhudzana ndi projekiti ya DiaChallenge, yomwe inali yofunika kwambiri kwa ine, chifukwa ndimakonda maulendo. Inde, ndizomwe ndimaganiza pomwe andisankha - ulendo. Koma sindinkaganiza kuti ulendo uwu ukasintha moyo wanga, zizolowezi zanga zakudya, njira yanga yophunzitsira, ndiphunzitse momwe ndingasankhire insulin, osawopa kukhala ndi matenda ashuga komanso nthawi yomweyo kusangalala ndi moyo.

Kodi okondedwa anu, abale anu ndi abwenzi anu adakumana bwanji atazindikira kuti mwazindikira? Kodi munamva bwanji?

Manjenjemera. Zowonadi, zinali zododometsa.

Ndinali ndi zaka 12, mwezi umodzi 13. Ndinayamba kumwa madzi ambiri, kuthamangira kuchimbudzi mkalasi ndikudya chilichonse. Nthawi yomweyo, ndinali mtsikana wamba woonda. Sindinadwale, sindinadandaule, ndipo kwakukulukulu, palibe chomwe chimadwala.

Nditayamba kuthamangira kuchimbudzi kangapo katatu pa phunziroli, ndinayamba kuganiza kuti china chake chalakwika. Ndimakumbukirabe chikupu chomwe chinali mchimbudzi ndi momwe ndimamwa madzi kuchokera m'malita, ndimadzi okoma kwambiri padziko lapansi ... Ndipo ndinadandaula kwa mayi anga.

Amayi adandilembera ku chipatala, ndikupereka magazi. Ndinadumpha tsiku lomwelo. Zinali zoyera buzz !! Namwino adandiwuza kuti ndisadalire maswiti ndikudikirira zotsatira. Ndidapita kukadzigulira mtundu wa njere za chokoleti (ndidali ndi maximalism, sindimamvera aliyense). Ndinkakhala kunyumba, kudula chopendekera ndipo ndinali wokondwa kwambiri kuyambira mwayi - kudumphira sukulu. Kenako amayi anga akuthamanga ndi zotsatira za kusanthula - 12 mmol okhala ndi chizolowezi cha 4-6 mmol - nati: "Konzeka, tikupita kuchipatala, uli ndi matenda ashuga."

Sindinamvetse chilichonse, ndine wathanzi, palibe chomwe chimandipweteka, bwanji ndili kuchipatala? Chifukwa chiyani amandipatsa madonsi, kundiletsa kudya maswiti ndi jakisoni asanadye? Ndiye inde, ndinadabwitsanso.

DiaChallenge - zenizeni zomwe zikuwoneka mdziko lapansi zikuwonetsa za moyo wa anthu omwe ali ndi matenda ashuga

 .Kodi pali chilichonse chomwe mumalota koma osatha kuchita chifukwa cha matenda ashuga?

Ayi. Maloto anga onse adzakwaniritsidwa, ndipo matenda ashuga si cholepheretsa mu izi, koma othandizira. Matenda a shuga ayenera kuphunziridwa kumwa. Nafe (anthu omwe ali ndi matenda ashuga - pafupifupi. ofiira.) palibe insulin yokha, ndipo china chilichonse chimangokhala chifukwa chosowa kulanga komanso kusazindikira.

Kodi ndi malingaliro olakwika ati okhudzana ndi matenda ashuga komanso omwe mudakumana nawo ngati mukudwala matenda ashuga?

Ndisanakhometse pampu ndikuponyera kudziko lapansi la anthu odwala matenda ashuga, ndimaganiza kuti onse anali odzaza. Zomwe ndidadabwitsidwa nditazindikira kuti pali akatswiri ashuga pakati pa akatswiri othamanga komanso odziwika bwino, komanso kuti matenda ashuga sikulepheretsa thupi lokongola, koma ulesi.

Ndisanakumane ndi atsikana pa projekitiyo (Olya ndi Lena), ndimaganiza kuti kubereka matenda ashuga ndizovuta kwambiri kuti ndikangopanga pakati, ndikachotsedwa mu moyo wanga chaka chonse, chifukwa ndizikhala kuchipinda chachipatala. Uku ndi malingaliro olakwika akulu. Ndi matenda ashuga amawuluka / kupuma / kusewera masewera ndipo amakhala chimodzimodzi ngati amayi apakati omwe alibe shuga.

Wizard wabwino atakuitanirani kuti mukwaniritse zomwe mukufuna, koma osakupulumutsani ku matenda ashuga, mungakonde?

Cholinga changa chachikulu ndi kukhala pafupi ndi nyanja kapena nyanja.

Zithunzi zojambulidwa ku DiaChallenge. Daria Sanina ndi mphunzitsi Alexei Shkuratov, yemwe, monga otenga nawo mbali, ali ndi matenda ashuga 1

Munthu yemwe ali ndi matenda ashuga posachedwa adzatopa, azidandaula za mawa ngakhale kukhumudwa. Nthawi ngati izi, thandizo la abale kapena abwenzi ndilofunika kwambiri - mukuganiza kuti liyenera kukhala lotani? Mukufuna kumva chiyani? Kodi tingatani kuti muthandizedi?

Chinsinsi changa ndi mawu a mayi anga. Komanso, nthawi zonse amakhala ofanana: "Kumbukirani zomwe mudakwanitsa kupulumuka, zina zonse ndizopusa, ndinu olimba - mutha kuzichita!"

Chowonadi ndi chakuti zaka 7 zapitazo m'moyo wanga panali kesi, zokumbukira zomwe zimandidabwitsa kwambiri ndikayamba kudandaula. Mbali yanga yakumanzere yam'mimba idayamba kupweteka kwambiri. Pakupita mwezi umodzi, adanditengera ku zipatala zonse pafupi ndi nyumbayo, kuyesa ma ultrasound, ndikuyesera. Choyamba, madokotala akamva za kupweteka kwam'mimba m'matenda a shuga, kukayikirana kumagwera pamatenda a kapamba ndi impso. Sanapeze chilichonse chonga chimenecho. Ndinaleka kudya kwathunthu, ndipo ndinayamba ketoacidosis, yomwe imayendera limodzi ndi zowawa mthupi lonse, makamaka m'mimba, ndipo ndinali nayo kale. Zinkawoneka kuti ndikusiya malingaliro. Sizinawonekere kwa ine ndekha, chifukwa chake ndinayitanidwa kwa wazamisala, adandipempha kuti ndidye, ndipo ndidapempha kuti ndichitepo kanthu ndi zowawa izi. Ndipo adanditengera kwa azachipatala. Lamlungu, madzulo, dotolo akuyimbira amapeza chotupa cham'mimba mwanga. Tinthu tating'onoting'ono tomwe nthawi zambiri sitigwiritsa ntchito. Ndipo ngati mungatero, itanani dokotala wa opaleshoni ya gynecologist. Ndipo pansi paudindo wanga, adadula 4 cm chotupa chovuta. Anesthesia, acetone ikupitilirabe kundiwotcha mkatikati, ndipo ndikupita ku chipatala chachikulu. Amayi anga adangovomereza kuti adauzidwa kuti mwana wawo wamkazi satsalira mwana wawo wamkazi mpaka m'mawa. Palibe, adapulumuka. Kwa miyezi ingapo sindinatuluke pakama, ogwetsedwera-koloko, ndinaphunziranso kudya, kuyendanso, kutayika 25 kg. Koma adakhalanso ndi moyo. Pang'onopang'ono, mothandizidwa ndi abale.

Malingaliro anga pazikhalidwe asintha. Ndinkakhala ndi mwayi wokhala ndi moyo, si aliyense amene akanatha kuwupatsa. Ndilibe ufulu wotaya kapena osalimbana ndi zamkhutu izi, zodzimvera chisoni.

Kodi mungalimbikitse bwanji munthu yemwe wapeza kumene za matenda akewo koma osavomereza?

"Ngati mukufuna kukhala ndi moyo, chitani," akutero a Dasha Sanina.

Ngati mukufuna kukhala ndi moyo, zichite. Chilichonse chili m'manja mwanu.

Zinanditengera zaka 15 kuti ndilandire matenda anga a shuga. Kwa zaka 15 ndidazunza, amayi ndi okondedwa. Sindinalandire ndipo sindimamva bwino! Ngakhale ndimafunitsitsadi kuti ndikhulupirire.

Osataya nthawi yanu! Si aliyense amene ali ndi mwayi ngati ine. Chaka chovomerezeka ndikokwanira kuti wina akhale wolemala kwa moyo wake wonse.

Yang'anani kwa anthu ena odwala matenda ashuga! Lowani pagulu, kukumanani, kulumikizana, kuthandizira ndikufanana ndi inu, ndipo nthawi zina chitsanzo, chowonadi chimathandiza!

Phunzirani kuseka nokha, pazochitika zina. Ndipo muzingomwetulira nthawi zambiri!

Kodi chilimbikitso chanu chotenga nawo gawo ku DiaChallenge ndi chiani?

Cholinga: Ndikufuna kubereka ana athanzi ndikukhala ndi moyo wokalamba, ndiphunzire kuthana ndi mavuto anga ndikuwonetsa mwa chitsanzo changa kuti sizinachedwe kusintha moyo wanga kukhala wabwino.

Chomwe chinali chovuta kwambiri polojekiti ndi chiyani chinali chosavuta?

Ndikosavuta kuphunzira kulanga: samalani tsiku ndi tsiku kuti musadziletse, musadye chakudya chochuluka, sonkhanitsani zotengera ndikuganiza za chakudya chamawa, phunzirani kuwerengera ndikusunga kudya zopatsa mphamvu tsiku ndi tsiku.

Nditapima kafukufuku wamaso kumayambiriro kwa polojekitiyi, ndinapeza zovuta m'maso mwanga, ndinayenera kuchita laser ndikuwotcha ziwiya kuti zotchinga zisadzaperekenso m'tsogolo. Izi sizoyipa komanso zovuta kwambiri. Zinali zovuta kupulumuka chifukwa chosowa masewera pachipatala.

Zinali zovuta kufa ndi njala kwa maola 6-8 kuchipatala akafufuza malo anga. Ndikosavuta kuyang'ana m'munsi ndikusamvetsetsa nokha. Ndipo zinali zovuta kusiya kufunsa mafunso kwa endocrinologist wa polojekitiyi, pomwe gawo la ntchito yodziyimira payokha liyamba, kuti athetse kugawana ndi otenga nawo mbali, akatswiri, ndi ogwira ntchito mufilimu.

Inde, njira yosavuta ndikugwiritsa ntchito nthawi ya Lamlungu lililonse komwe mukumveka.

Dzinalo la polojeketi lili ndi liwu lakuti Challenge, lotanthauza "zovuta." Ndi vuto liti lomwe mwadziponya nokha mukutenga nawo gawo pa DiaChallenge, ndipo zidabweretsa chiyani?

Ndidatsutsa ulesi wanga komanso mantha anga, ndidasintha moyo wanga wonse, malingaliro anga okhudzana ndi matenda ashuga ndipo ndidayamba kulimbikitsa anthu onga ine.

ZAMBIRI ZA PANGANI

Ntchito ya DiaChallenge ndiyophatikiza mitundu iwiri - zolemba komanso zowona. Adasankhidwa ndi anthu 9 omwe ali ndi vuto la matenda ashuga a mtundu woyamba: aliyense wa iwo ali ndi zolinga zawo: wina amafuna kuphunzira momwe angalipirire matenda ashuga, wina amafuna kuti akhale wokwanira, ena adathetsa mavuto amisala.

Kwa miyezi itatu, akatswiri atatu adagwira ntchito ndi omwe atenga nawo polojekiti: katswiri wazamaphunziro, katswiri wazamaphunziro, komanso wophunzitsa. Onsewa ankakumana kamodzi pa sabata, ndipo munthawi yochepayi, akatswiri adathandizira otenga nawo mbali kudzipangira tepi ndikuyankha mafunso omwe amawafunsa. Ophunzira adadzitha okha ndikuphunzira kusamalira matenda awo a shuga osati m'malo opanga malo okhala, koma m'moyo wamba.

Ophunzira ndi akatswiri pazowona zenizeni akuwonetsa DiaChallenge

Wolemba ntchitoyi ndi Yekaterina Argir, Wachiwiri kwa General Director wa ELTA Company LLC.

"Kampani yathu yokha yopanga ku Russia yopanga magazi m'magazi ndipo chaka chino ndi ya zaka 25. Ntchito ya DiaChallenge idabadwa chifukwa timafuna kuthandiza kukhazikitsa mfundo zofunikira pagulu. Tikufuna thanzi pakati pawo, ndipo pulojekiti ya DiaChallenge ili pafupi ndi ichi. Chifukwa chake, ndizothandiza kuionera osati anthu okhawo omwe ali ndi matenda ashuga komanso okondedwa awo, komanso anthu omwe samayanjana ndi matendawa, "akufotokoza Ekaterina.

Kuphatikiza pakuperekeza endocrinologist, wama psychologist ndi mphunzitsi kwa miyezi itatu, otenga nawo mbali amalandila zida za Satellite Express zodziyang'anira miyezi isanu ndi umodzi ndi kuyesedwa kwathunthu kwachipatala kumayambiriro kwa ntchitoyi ndikutha. Malinga ndi zotsatira za gawo lirilonse, wogwira nawo ntchito kwambiri komanso wogwira mtima amapatsidwa mphotho ya ndalama mu ruble 100,000.


Mfundo yoyamba ya polojekitiyi yakonzedwa ndi Seputembara 14: kulembetsa ku DiaChallenge Channelkuti musaphonye gawo loyamba. Kanemayo amakhala ndi zigawo 14 zomwe zidzaikidwa pa intaneti sabata iliyonse.

 

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